It never really feels like we are managing. All day long is a constant dance with severe ME calling the tune. You want something. You cannot have it. You hope for something. You are disappointed. You demand you can do it. You still cannot do it. It just simply does not work like that.
You cannot fathom out the beat, nor the rhyme, nor the reason , most of the time. Managing ME then is simply impossible really.
The best we can manage to do is not despair but leap over the hurdles thrown in the path of life by ME and all its complex symptoms and torments , in order to find moments of love, moments even of happiness, moments of calm , moments of inner peace and oneness.
This then is our aim. To manage not to fall into the many traps of the day, set by the illness that can unhinge us and lead us away from stillness and flowing together . For this we need God, to rely on, to lead us and lift us and hold us and comfort us , to bless us and keep us safe. Amen
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